Yes, that's the title of my talk to open the Medicine 2.0 Congress in Toronto next week. Yes, it's the published, advertised title. I believe patients should have complete access to their health data.
Whose data is it, anyway? I said that in May (in my post on "meaningful use"), I was one of the first to endorse the Declaration of Health Data Rights in June, and it was the crux of an ad hoc talk I gave in Washington in June.
But we certainly aren't there yet. Please help me create my talk. What would you want to discuss in Q&A?
Last night I tweeted:
I intend to make a forceful case for it, and I'm not aiming to preach to the converted.A side note -
So the question will be, what could I say that could make any difference - move the unmoved?
I have no interest in polarization; my schtick is to move people's point of view.
This will be my first-ever keynote to open a conference. Many thanks to Gunther Eysenbach for inviting me. Gunther is the man who, years ago, did the original study that failed to find any cases of "death by googling," an evidence-based finding that opened the door to patient engagement. Today he is publisher of the Journal of Medical Internet Research.
So, here's my question: What could be my "call to action" as the conference starts? (The full conference program is here.)
See, my secret for mid-conference talks is to "listen to the room" and see what needs to be said. But when you're the first guy out of the box you can't do that. :)