This post is scheduled to release as I'm doing a guest lecture at Tufts University School of Medicine for students pursing their MPH (masters of public health). The course is on consumer health web sites. The instructor is the amazing Lisa Neal Gualtieri, whom I met in March at a wonderful session she was leading (I blogged it live) called "Patient, Heal Thyself." :)
Here are the links I promised the class.
- My personal communities: www.ACOR.org, CaringBridge
- e-Patient Scholars Working Group blog
- e-Patients white paper: My chapter synposes
- Steal These Slides: Tom Ferguson's visionary prediction, when the Web was just months old, about how information-age medicine would turn the world on its head.
- My post on Evidence-based medicine (cites The End of Medicine)
- Making Sense of Health Statistics (excellent paper, discussed on the e-patients blog)
- HealthNewsReview.org: excellent site that evaluates the quality of reporting on health issues, particularly research. (Search for "statins" and you'll see how poor is the quality of most news coverage about statins.)
- Best Care Anywhere: Why VA Health Care is Better Than Yours - my five-part series as I was blown away by this fine book. Buy it and read it. Please; you should have your own copy. It's $10.17 on Amazon.
- The Pew Internet & American Life project
- Tom Daschle's healthcare book Critical - the most helpful reviews on Amazon*
- Patient-Centered Primary Care Collaborative (PCPCC)
- PCPCC slides on my blog
- Definitions of participatory medicine etc
- Overtreated: why too much medicine is making us sicker and poorer, by Shannon Brownlee - most helpful reviews on Amazon
One other thing: in October my primary care physician and I presented a session at the Connected Health Symposium conducted by Partners Healthcare. Video and slides are here.
Lisa, thank you for having me, and students, thank you again for going into public health. We need lots and lots of well-educated caring people creating the next generation of healthcare, and it was a privilege (and fun!) to meet with people who are learning to create Health 2.0 and do it well!
Remember - it's all about the community. Platform comes second. Start by finding out what people want.
* re "most helpful reviews on Amazon": I've found that when I'm in a hurry to know the good and bad about a book, I can go to Amazon and find the spot where it says "25 customer reviews" and click it, and the site will display at the top the positive and negative reviews that others have voted as most useful.
Think about that. It's 100% user-generated / community-generated opinion. People helping people and expressing themselves at the same time. That's Web 2.0, which is the foundation for Health 2.0.