This weekend the Associated Press is publishing a story about CaringBridge and a similar site, CarePages. It relates the experience of several users, including my community and family. For more information, see my CaringBridge journal.
Update 6/8: Scientific American's blog has this:Blogging--It's Good for You
Visitors: if you're looking for great resources for self-education on how to be an effective consumer in today's healthcare system, here's a post from my CaringBridge site a few weeks ago:
The therapeutic value of blogging becomes a focus of study
... A study in the February issue of the Oncologist reports that cancer patients who engaged in expressive writing just before treatment felt markedly better, mentally and physically, as compared with patients who did not. ...
RESOURCES FOR INTERNET PATIENTS
As regular readers know, during this past year I've become a strong advocate of all the ways patients can improve their outcomes and their experience, becoming active participants in their care, especially by using the Internet.
Here are some resources:
On this blog I'm starting a beginner's guide to participatory medicine. It's my effort to share what I learned last year, with the intention that others can take a shortcut. In particular I recommend the chapter about "the five pillars of participatory medicine."
To see how it works, you can get the whole year's transcript (1/30/07 - 1/30/08) as a free download (one big file or single chapters), and read while you're sitting in waiting rooms. :)
Those sites have many links to other web sites. Do your own exploring - see where it takes you.
And by all means, get out there and PARTICIPATE. In the world of blogging, that means you click the Comments link (or Guestbook, on CaringBridge), and enter questions or comments.
Be an e-patient: Ask what you want to know; say what you think.
Saturday, June 7, 2008
CaringBridge story
- e-Patient Dave - 1:21 AM
Labels: Associated Press, caringbridge
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